Okay , a week under my wig now.
A week without radiation. So, you ask, how do I feel?
Like I have been run over by a truck, then got the flu, then delivered a baby, then run over by another truck. I am weak weak, weak. I knew I would have fatigue, knew the body doesn't forget, knew radiation zaps you a tough zap and takes away every shred of energy you have left --- but I forgot how bad it can be.
I wake up hoping to feel energy, that jump out of bed, go get the coffee full of spirit, but no way. I get up, hold on to the wall to walk, not trusting my legs to get me where I am going. I put on the coffee, go back to the bed until the coffee is done, then sit on my bed to drink it, not for the great view or anything, but with the knowledge that if I suddenly feel faint, I can set the cup down and get back under the covers.
It's a crappy feeling -- and the many of you reading this who are in chemo or radiation or have done both are no doubt nodding in agreement,knowing exactly what I mean when I say " tired."
Is there any fatigue that matches it? I think not , not even the worst case of the flu.
And, I had forgotten about the leg cramps. Last May, June and July I suffered those -- remember my friend Diane calling me from Walla Walla in August, asking was I still getting such bad leg pains? When she had visited me, I was up and down all night using an electric massager to ease the pain. Well, hello, the leg cramps are back. Must be another side effect of radiation the doctors don't tell you.
I remember last year when I got the burned esophagus and couldn't swallow and complained to the doctor and amongst my complaints was the wonder why no one had told me that would happen. I remember his answer," You might have said no to radiation if we told you."
I'd not have said " no", but I like to know what is facing me so I can somehow gear up.
I had my first meltdown in all my five cancers last week. Not very inspiring to tell you that - -but so tired of pain and being tired, I suddenly began getting crying jags. The added attraction of loose teeth and a painful mouth didn't help any -- nor the fact I was entering what is it, three months, of still being on a liquid diet.
I'm okay today. I mean okay emotionally. I know my dental work will be begin on the 19th -- 7 crowns, root canals, extractions, bridges -- my gawd a ton of work and what probably made me cry was the bill ---- $8,500.
My friend Ann Shields who writes the blog Sassywrite stuff on typepad.com sent me an email saying maybe we should do a telethon to raise funds for me. I rather like the idea. Prefer that over a five year payment plan. This is like buying a car only my teeth will be worth more than my 1998 Honda CRV!
Good News:
I haven't seen my daughters ( visualchronicles.com) since January - -they have been so busy with books, and art, and kids, and work, and ball games - -well, if you have adult children with kids of their own , you understand. Gone are the days of over the river and across the bridge to grandmothers house we go --- to get to see them is harder than trying to get a real person on the line at the cable company.... BUT guess what? On Sunday the 25th both girls are coming here to see me for a few hours, we'll go down to the Ventura oceanfront boardwalk, see the surf, see the vendors out selling wares, have some quality time together. I'm looking forward to it.
I know, I sounded like a Jewish mother complaining I never see my kids - well, I am a Jewish mother and from what some friends write me this goes beyond Jewish mothers, it is all mothers with adult children who have kids in a zillion activities leaving no time for family time with a grandparent. Many is the time I have emailed a wipe of tears from a friend feeling lonely or discarded or forgotten because months had gone by without her seeing her kids. And, I know my own mother keeps asking, " when am I going to see you, it feels like ages?"
I wish to hell I could go see my Mom. She is miles and money costs away. I'll try for her 95th birthday in May if I am not in chemo.
The phone calls just aren't that satisfying --- need to be together in person with her.
No, before you ask, I never told her I had cancer. Not this time, not last time, not the time before that, either. My weak voice I blamed on allergies and she bought it and continues to buy it.
Fights:
I have Medicare. It paid the $1750 a day for radiation, or a goodly portion of it and then my AARP kicked in and paid the rest. I rarely worry about it or the thousands it costs for a PET scan or MRI and God knows I have had a lot of them in recent months and, well, recent years.
Saturday's mail brought a letter from a collection agency. Over $5,000 owed for some scan. Nothing I could do about it on the weekend other than toss and turn and fret.
I called the collection agency this a.m... and it was push 1 for this, push 2 for that - all the way up to number six by which time I had forgotten what number one was.
I kept pushing zero and the recorded voice would say, " we don't recognize that entry, please try again"... and on it went until hitting zero over and over finally got me a recording to leave a message, which I did.
Bottom line to that call --- they claimed AARP had not paid their portion. Well, AARP always pays, so I said to call them. Oh, no, I could be dropping dead here but the collection folks only make calls to the insured , the nonpayee person, never to the insurance company. I should call. I did. AARP records show I did pay. They gave me a phone number to give to the collection agency, they should call and AARP would give them the info.
Sounded simple and I was less worrisome. Called back the collection agency. They won't call the number, I should do it, get AARP to fax them. Did that. AARP would not fax, they will only mail and not to the agency, only to me. Will take about two weeks. So another call to the agency to tell them that.
That all took three hours to do and a toll on me.
My bit of voice I did have is now back to hoarse and if I could find some way to eliminate all these " our menus have changed" recordings, believe me I would do it for us all.
Weather Report
Ah, move to the ocean, cool breezes, escape the desert heat. Someone call Al Gore, it was over 90 here this weekend -- big jump. HOT... but I see from a wire story a pal sent me that old man Bush fainted in the Palm Springs area over the weekend, the sudden rise in heat there got to him.
Nice words to read...
Years ago I wrote a column mention on Allene Arthur who writes this wonderful column for the Desert Sun in Palm Springs. She had sent me such a clever thank you note saying it is shallow to want to see one's name in the paper.. then signed it with a thanks and the fake name " shallow".
This Sunday, reading the Desert Sun online, I read her column about a party hosted for or honoring Merv Griffin in the desert and a party about Jane Wyman and then at the end of Arthur's column she had quotes worth repeating and there, plain as day was " Jan Curran, writer" and a quote from me.
I sent her a shallow thank you.
More surprising words
Years ago, back in the days when I did public relations at the Jones Agency in Palm Springs I worked with this knockout beautiful blond named Tracey. We were pals and then , to my dismay, she moved to Chicago or somewhere. I'd hear about her from a mutual friend named Ann, always glad to get a tidbit, and thought about Tracey often and the good times we all used to have.
I was so surprised to log on to typepad and find a loving message from Tracey. Wow, did that lift my spirits.
She could have read my blog and never let me know, but not Tracey - she wrote.
Many thanks and also before I log off here, again thanks to all of you who tell me this blog has helped you through some rough cancer times, that just knowing you aren't the only one going through the rough times that mean treatment.
Remember, as you dress each day, the most important thing you put on is your smile.
Jan
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